Scaling the Rock of Disappointment: Tales of Coronavirus Setbacks

“What do you do when disappointment comes? When it weighs on you like a rock, you can either let it press you down until you become discouraged, even devastated, or you can use it as a stepping-stone to better things.”– Joyce Meyer

Yesterday, while on my walk, the word “Disappointment” was dropped into my head and heart as if by some Divine force. Sometimes, that’s how my life works, God lays a bread crumb trail to where I’m needed. I followed the crumbs to Facebook, where I asked people to share their experiences of disappointment. Nearly twenty hours later, I am still getting pings on Messenger, and the stories have brought me to tears.

I’ll start with mine.

I have, for two consecutive years, been interviewing to work with the Disney Corporation in a department so perfectly suited to my talents, training, and experience that it might have been created specifically for me: to host in the student field trip program at Disneyland in Anaheim. Last year, I got so close to a job offer that I put myself on a waiting list for a spot at a long-term camping resort just a couple of miles from the park, and, in an attempt to put manifestation to work for a dream, I wrote a blog post that I never got to publish to announce my new position:

“And so here I am. I am about to leave for Anaheim, where I will spend my days with student groups, taking everything I have learned about teaching and classroom management as well as all the skills I honed running the School Days program at Texas Renaissance  Festival to walk alongside them in the most magical place I know. I will get to share my love of theatre and my love of Mickey Mouse. I don’t know if this will be a forever career or a seasonal one, but I have spent enough time among seasonal festival business people to have no fear of the unknown.”

It is only slightly comforting to know that the coronavirus would have halted the dream. Had I gotten the job and toodled my tiny camper to Cali only to be sent home like all the frontline Disney employees were in April, the knowledge that I had gotten the offer, that I had done the work for a couple of months, that I would have a place waiting for me when the virus had run its course, does not dampen the tremendous sense of disappointment.

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It is likely that this year I would have gotten an offer in September. No more. The parks are barely functioning, schools are unlikely to open as normal this fall. Budgets on both ends of this equation are stripped to their bare minimums. I may be able to postpone this dream for one more year, perhaps September of 2021 will bring me an offer.  But damn, it has been excruciating to examine that dream, then stash it in the box on my highest closet shelf, a  clear plastic bin full of Mickey ears, souvenir pins, and my name tag from the Disney leadership summit I attended in 2018.

Disappointment.

A dear friend of our family, a young woman I held when she was just three days old, graduated from high school this June. We had watched all her posts of spinning flags in her school’s corps, her photos of banquets in pretty gowns, her braces on, then her gleaming, perfect smile when the braces came off. She didn’t get her prom, her graduation was weird. I had a hoodie custom made for her to wear at her university this fall, but her family is not even sure what university life will look like- will she get to move into the dorm, attend Fish Camp, pledge a club? Disappointment.

A friend miscarried at 7. 5 weeks, but because of Covid didn’t have access to in-person medical care until her 13th week, when an ultrasound revealed a gestational sac that had stopped growing. With only virtual visits and a revolving door of doctors, her diagnosis was missed, and what was meant to be a Father’s Day announcement of a new baby became instead a D-and-C. Profound, heart-wrenching disappointment.

My friends have lost dream careers, canceled long-awaited family reunions, foregone first-baby showers, and summer camps. They’re scared they’ll lose their aging parents during this awful time when they cannot say goodbye except through a video app on the phone or computer. One is, in fact, watching her mother die and she can’t say goodbye in person. A couple have lost close family members and could not seek the comfort of ritual and family to sustain them in their grief.

One of the strongest women I know wrote:

“This pandemic has caused great grief and managed to unbottle all previous grief. Nowhere to go, no outlet to channel it, it just keeps crashing over and over again.
The riptide has taken me and all I can do is keep calm, hold my breath, get my bearings, and try to swim even with the shore or the wave will win.”

Disappointment.

It starts early in our lives and comes in big packages and small. A birthday party rained out, a cancer surgery unsuccessful. A cake is dry, a parent abuses. Disappointment may be mild, it can be devastating. And we all know that the very worst critique we can receive from a parent, teacher, or boss is, “I’m disappointed in you.”

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Photo by Ylanite Koppens on Pexels.com

Disappointment is something we humans must wrestle with, though thankfully, not constantly. Even in a challenging, dark life, there are glorious moments when we get the part we auditioned for, when healthy babies are born, when the movies we’ve anticipated are as good as we’d hoped. Medical tests come back with favorable results, apologies are offered and accepted, the sun shines on the wedding day; simple kindnesses like bread shared or a letter received bring just a glimmer of joy.

I have learned that the best way to overcome disappointment is first, acknowledge that it’s there. We can’t deal with what we’re too afraid or ashamed to name. Share the burden of it with a friend. Let them share with you as well.

Next, we look inward, which requires a commitment to gentle but honest self-examination. I used to believe in rigorous, unflinching self-examination, but that only led to being hypercritical of myself, unforgiving and unwilling to grant grace for my own failures. To grow in grace, to be honest about my own disappointments, to acknowledge when I have disappointed others, I listen. I seek wisdom from those who are living lives that shine, sometimes in the form of conversations with trusted mentors, frequently in podcasts, constantly in books.

Spend time in fresh air. For me, this is to walk or ride my bicycle or, when rheumatoid arthritis is wracking, to sit. To settle among birds, dragonflies, and breeze is healing. I do not know that there is a way to live in spiritual or mental health unless one gets outside. When I am among the trees and grass, I have my best ideas, I lay plans and untangle the knots in my thinking. And I am, thank all that is good and wholesome, not mindlessly scrolling the swamp that Facebook can become.

Express the disappointment, if it lives in the shadows and crevices of your heart, it will fester. I write. Every day, every morning. I write by hand, two to three pages. It is a practice that has become as necessary as air. I used to think it was my daily orange juice that got me going in the morning; I know for many folks, it’s their first cup of coffee. But for me, spending thirty minutes writing before I dive into my day has been life-changing. The words are uncensored and inelegant, a nearly-illegible scrawl. I ponder and process feminine spirituality, I list things I am grateful for, I articulate dreams, I unpack the worries that are plaguing me. I have been sleeping better since I began this writing practice, I think it’s vital.

To look outward, though, that is the final stepping stone to lay on our path to healing and mental health. We can’t look outward in a way that compares our own suffering or disappointments to others’, on that path exists only bitterness or pride; there will always be someone who has it better and someone who has it worse. Our disappointment is ours, and it is valid. No, what I mean by “looking outward” is simply this: look for ways to serve, to heal. Write letters. Call a lonely friend or elder person who lives alone. Sew masks and distribute them to the less fortunate. Listen to the stories of the unheard. Deliver meals. Discover your gift then ply it to plug joy back into the connected race that is all of us. Set your sights on the restoration of the soul of humanity.

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Photo by Nacho Juárez on Pexels.com

These actions serve to nourish and defend against the sharpest nettles of disappointment. They are stones that can be stacked, one beside and above the other, to forge a path that leads us out of today’s disappointment and ahead to tomorrow’s blessing. It’s hard to see sometimes. But stillness followed by service can be a gorgeous way forward. The inimitable Marilyn Monroe once said, “Sometimes good things fall apart so better things can fall together.” I love that. Our world is falling apart. Perhaps we will build something better, both in a global sense and a deeply personal one.

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Tell Them a Story. Like Big Bird!

“Sunny day
Sweeping the clouds away
On my way to where the air is sweet
Can you tell me how to get
How to get to Sesame Street?”

This morning, my daughter suggested we turn Sesame Street on for her one-year-old. We did, and oh, the feelings that swept through me.

It’s the first week of a new decade. My holiday decorations are stored, the garage is impossible to use while we try to clear the house of clutter, I used New Year’s Eve to paint a bedroom. There’s a new baby, just twenty days old, living in my house and distracting me from my chores (I am joyous to oblige him). Lots of fresh starting going on.

There’s also a lot of nostalgic wishing and sighing. A little angst- I still haven’t had a book published or lost the ten pounds I need to, but those are little angsts. The big angst is over people I miss. When you’re very, very young, like my two grandchildren, time has no meaning. Days? Months? Years? Decades? Pfft. When you’re a teen or perhaps a young adult, every new year may feel like the beginning, like a fresh start full of promise. Onward!

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When you’re in the middle, like I am, you look forward and backward in equal measure. And this morning, with Big Bird on the screen, I didn’t just glance backward. My very soul seemed pulled right out of the now. The episode began with Elmo singing with friends on the stoop of the brownstone, the green doors opening to reveal Gordon, his father, and his son, Miles. They told a surprised Elmo and Miles, who couldn’t imagine that the two old guys might have been musicians, stories of their younger days as a singer and a guitarist. Gordon’s flashback included Luis and Bob, and my five-year-old spirit danced in recognition.

I have always loved Sesame Street. Its literacy lessons gave me reading, but its inclusive kindness gave me hope. I was a pretty lonely kid, and Big Bird’s gentle love for the invisible Snuffy was a source of great joy for me. When my own eldest was a toddler, I shared SS with her on the Lubbock PBS station; Ernie was her favorite. For her second Christmas, we got her an Ernie ornament for our tree. My father was with us that Christmas, and when we hung that Ernie, he told me that he remembered how I had loved the show as a small girl. I had never realized he’d noticed that. But I did, I really did love it. And my dad. He loved me, too.

Caroll Spinney, the operator and voice of both Big Bird and Oscar the Grouch, passed on my granddaughter’s first birthday, and as she stood at the TV screen this morning, I realized anew just how important it is that we pass along, to our children and grandchildren, all the things that Sesame Street holds dear: kindness, literacy, and story.

Story is power, it is magic, it is blessing and curse. Humans love stories. We draw them, film them, record them, write them, and tell them around campfires. My Grandma June used to tell the same family yarns over and over at gatherings, so often repeating herself that her kids and kids-in-law developed a hand signal: when Grandma started a story they’d all heard before, they would start flashing their fingers above their heads to indicate how many times they’d heard the tale. Then they’d all laugh, including Grandma, and she’d tell the story anyhow. Story is how the thread of a family can be woven in and around generations, creating a tapestry that is indestructible. It may become threadbare at times, perhaps worn or frayed, but the through-line will preserve a household. How can we share story?

Story can be long. My Grandmother Juanita was a seamstress; when I’d visit and she needed to sew for a client, she’d set me up near her machine with my own doll, fabric scraps, needle, and thread. I’d cut and stitch as she made beautiful dresses, while stories fell from between her pin-filled lips. Stories of raising children while picking cotton, stories of church. Stories about the women who came to her home for dress fittings. She shared an oral history with me that could not have been heard if we’d been in front of a screen. Those stories took hours of communication: her talking, me listening and asking questions.

But that’s not the only way to share story. There are ways to incorporate it into a daily life lived in such a way that our tales flow out of us, long and short, deeply profound or joyfully silly, memorable or not. Each story shared, no matter length or gravitas, builds a connection with each other: parent to child, roomie to roomie, teacher to student.

Though I usually shy away from creating a list, today I am giving it a try. Here are some ways to share story with your loved ones, whether family of blood or family of choice, friends treasured, or students respected.

  • The most obvious is to share meals around a table. Screens off. Though my hubby and I share our meals in front of a TV now, when we were raising kids, we gathered them around the table, television off, for dinner every night. Those thirty minutes allowed everyone to hear and be heard. It did get harder as they got older and began playing sports and taking dance lessons. But the foundation we laid in their younger years remains firm.
  • Leave the photo albums and scrapbooks out where everyone has quick and easy access. I used to spend hours poring over my parents’ wedding album and the albums of all the photos taken when they were young and my brother and I were small. Sometimes I asked my parents what was happening in a particular picture, but at other times I allowed these photos to be a jumping-off place for histories of my own creation. I personally have around twelve albums now of my own family.  And if some of the cute decorations in the albums that moms of my generation were creating so lovingly during the 90s and 00s get torn, so what?
  • Tiny moments call for short stories. Washing dishes, tucking in, not making the team…all opportunities for stories that are just a couple of sentences. When I was tightening the key on the expander in my kids’ mouths (they all inherited my narrow jaw, unfortunately), I’d tell them tales of my own orthodontic nightmares, including the time when my inner upper lip cut open then sealed shut over the arch of wire running along my upper gums. These old stories gave them hope that they’d survive the ordeal, it let them know that I really did understand their pain, and it helped them to understand that I am a person who lived and loved before they came along.
  • Write things down. It doesn’t have to be pretty or even grammatically flawless. One of my most treasured possessions is the file of letters that my grandfather wrote to my grandmother during their courtship. Sometimes, I sit and read a couple of those letters that are in his scrawled, slanting handwriting, and I feel him and remember him so closely. Keep a book in which you grab a pen and write short notes. Your loved ones will be glad to have it someday. And it’s just not quite the same if it’s all done exclusively digitally.
  • However, sometime technology really can be helpful! Call and leave voice texts-not voice mails, but actual voice texts. They can be longer, can be saved, and can be listened to at convenience and on repeat. Since we’re all carrying smart phones now, you can simply pop in your AirPods and listen to a saved message from the one you miss.
  • When I was a kid, there was a rack of record albums sitting by my parents’ stereo console, I could pull a record out of its sleeve, set it on the turntable, and have a sense of my family through the music they loved. When I was a young adult, we were making mix tapes and CDs, assembling the songs we loved to tell others about us. Now, we can make a playlist and share it. And if we listen to it together, we can share the stories that go along with the songs. At our house, anytime Amy Grant’s “Baby, Baby” comes on, I have to tell the story of my daughter pronouncing it “Maven, Maven” as I drove our used sedan to work, dropping her and her baby brother off at daycare at Ms. Sharina’s first.
  • Traditions and rituals make wonderful opportunities for sharing stories. It might be a cooking tradition, a travel tradition, a holiday tradition. At our house, the kids (now 30, 28, and 25) get a new ornament on the tree every year. They have to hunt for it on Christmas Eve after our traditional dinner of tortilla soup and tamales. Of course there is Ernie, but also a baseball player or two, caps and gowns, and a sparkly frog. And when I hang them, everyone there has to listen if I want to tell the story of any ornament. img_1449.jpgThere is one ornament we don’t hang now, it is the matched set of my daughter and her husband from the year they married, 2016. Custom made by an artist friend, they are perfect little replicas of my daughter and son-in-law on their wedding day. Their marriage crumbled after just one year, the weight of his opioid addiction simply too much to bear.

The stories will not be, should not be, exclusively happy. There are sad stories to tell: pets lost, marriages dissolved, arguments and deaths. But we should share them nonetheless. Our lives are the stories we live and leave behind. We have the power to create and share resonant truths. And from these stories of grief and struggle, we learn that resilience is possible.

More importantly, we have the privilege of authoring our own stories, living them daily in front and alongside the ones we love. May your story be heard and your life seen.

As the wonderful Jim Henson, creator of the Muppets and my sweet Sesame Street said, “Life’s like a movie, write your own ending. Keep believing, keep pretending.”

Interested in learning more about telling story in your family? I love this blog!

 

 

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Speak Up: Part Two

September is a great month, isn’t it? The light is just starting to shift from high-octane sun to a softer diffused version of itself, breezes begin to tickle cheeks and make leaves dance. Rain falls and the scorched earth of August relents. The grass is verdant again and shadows lengthen on the pavement ever so slightly. School is back in, students are, for the most part, still excited to be back in the classroom, and teachers have renewed purpose and fresh, unmarked lesson plan books. In our family, we have two birthdays to celebrate, the Astros are still playing, and we are usually preparing to open the Renaissance festival that we’ve worked for twenty years now.

I love September. I have been a teacher/professor for twenty four years now, and I always look forward to the opening of school (which technically happens in late August here, I am taking a wee bit of poetic license- the relevant stuff happens in September, I promise). It was no different in 2011, when I opened a new year with a black eye because I dropped my first gen iPad on my face while checking Facebook before getting out of bed. Those early model tablets are no joke in the weight category! Each class began with excited chatter that quickly silenced when I took to my podium after the tardy bell. My poor new high school students were afraid to ask what had happened, so I began each of six class periods with an introduction and an explanation.

IMG_9669I spent the first week of school swallowing Gabapentin pills (as prescribed) to numb the nerve pain that tingled from the base of my spine to the tips of my fingers and back again, all while learning students’ names, playing warm up games, and preparing young actors and student directors for the fall play auditions. We were putting up the Don Zolidis farce The Greek Mythology Olympiaganza, and some seniors were going to assistant direct the various scenes, to give them a bit of practice applying what they’d learned in three years in my program, but also to give me much-needed assistance since I’d be recovering from spinal surgery.

My assistant principal had endured the same procedure just a couple of years before, she assured me that she was back on her feet and working within a week. I requested the day of my surgery (a Tuesday) and the Wednesday and Thursday off from work to recover, with a plan to return to my classroom on Friday.

On a warm, sunny September first, I walked into the nearby hospital, all prepped for spinal surgery, which went well. My spine was fused, and the extreme, debilitating pain I had been suffering for months was gone.

On an equally sunny day, just two weeks later, my world was rocked by a new doctor’s diagnosis: paralyzed vocal cord.

When I wrote about this a couple of weeks ago, I included just one mention of what I had been since childhood. Just one word. One measly word to tell you, dear reader, who I had always, ever been: a singer.

Not just a sing-in-the-shower singer. A state-level soloist and all district, area, and region choir qualifier in one of the most vocally competitive states in the country. A voice major in the early years of college who switched to elementary music so she could get married and have babies instead of pursuing a grueling performance career. A singer that brought some listeners to tears, others to laughter, and a few to envy.

I sang on stages and in sanctuaries and by cradles.

In recording studios.

On the radio.

I sang. It was the only thing I thought I did well. My only gift.

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I had warned my neurosurgeon that my voice had to be protected when my throat was pushed aside so he could get spinal access, I asked if he could access my cervical vertebrae from the back of my neck instead of the front of my throat. His answer: “No. but in the twenty years I have been doing this surgery, no one’s voice has ever been damaged. Of course, I can’t make you a promise, but the likelihood of your voice being affected in any way is negligible.”

I went for my follow up appointment with my surgeon three weeks after my surgery, when I had already had my throat scoped by an ear, nose, throat specialist. When Doc entered the examining room and cheerily asked how I was feeling, I beckoned him to lean near and whispered, “My voice is gone. The cord is paralyzed.” He went pale, his eyes widened, he was clearly and authentically horrified. All he could say was, “You’re a singer. Oh, no…this has never, ever happened to one of my patients, and it had to be a singer.” He couldn’t say he was sorry, that’s something doctors really can’t do. Apologizing is like admitting guilt, or a mistake, which can become a legal liability. No, he couldn’t apologize with his mouth and his perfectly working voice. But it was in his eyes.

The ENT who had made the initial diagnosis referred me to a specialist in Houston, a physician who has dedicated her practice to saving voices. I made an appointment, my husband drove me as I worried what she would say. I doubted my own ability to remain calm enough to navigate Houston’s infamous high-traffic freeways. It was good he was there, because the news was not good.

Dr. B. sprayed my throat with vile banana-flavored numbing medicine, and ran the camera through my nasal passages, down my throat. I attempted all sorts of vocalizations: vowels, consonants, sung tones; nothing came out. The cord didn’t vibrate even a tiny bit. It was dead. Kaput.

The physician wanted to wait a few months, see if the nerve endings would wake up on their own.

I left the office, bereft, silent tears ran down my cheeks and dripped off my jawline for the hour of the drive out to our suburban home. I climbed into bed, and I despaired. My throat was silent, but my spirit screamed; I was, as Shakespeare described, an empty vessel. Though I made no sound that was audible to the world, my inner world was a cacophony of noise as I railed against fate and wept out all my world-shattering grief.

I wouldn’t speak again for a year.

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Speak Up! Unless You…Can’t. Pt. 1

Oh, boy. There is a lot of noise happening in the world right now. It needs to, in my opinion. We need to make noise about equality. About human rights. About Earth care. Our voices should be used for justice.

Not only that, there are the other, wonderful things that our voices do. They tell the ones we cherish: “I love you.” They sing lullabies to cranky babies. They shout encouragement to our Little Leaguers. They pray. They counsel. They order cocktails.

TRF 2_42I had always been a singer, an actress, a teacher.

What happens when you can’t make noise? What happens when you can’t talk? I don’t mean just that you’re uncomfortable talking, that you’re shy…I mean: what happens when you physically can’t talk because your vocal cords have been injured?

That happened to me. One day I was rolled on a gurney into a surgical suite to have my cervical vertebrae fused, the next day I was wheeled in a chair to my car, assisted upstairs to my bed, and didn’t talk again for a year.

In that time, I learned what it meant to be silenced.

Silence isn’t a concept we westerners are terribly familiar with. America and Canada are “speaking cultures,” but Nordic and Asian countries are “listening cultures.” In the US, we fill silences with chatter, we are uncomfortable with conversational lulls and jump in to fill them, we may even interrupt each other to be assured that our points can be made (we’re not as prone to interrupt and talk over each other as Italians though, they speak over each other as an accepted mode of conversation).

And it’s not just talking that fills our ears. We inhabit a noisy world. There are televisions, radios, and video games blasting media racket. Birds and dogs and bubbling water and trees branches in the breeze create a nature melody. Dishwashers and plumbing gurgle and swish. Children scream. Adults bicker. And for the “normal” person, the one who can both hear and speak, it’s pretty easy to chime in. Even if you’re a bit timid, you can probably make your voice work. You likely are able to open your mouth, expel air across your vocal cords with the use of your diaphragm, send signals from brain to tongue and teeth to manipulate sound, and get your message out. You really don’t have to give a thought to the mechanics of it.

Unless there is a physical impairment, this skill develops naturally in us. I have been watching my granddaughter as she learns to vocalize, she’s added the hard *g* and *d* to her repertoire of pre-speech sounds this week, and my response, as her Lolly, has been as rapturous as if she had just trilled a perfect Mozart aria.

The realization that my voice was gone was a slow process. When I first awoke in the hospital, I couldn’t make any sound at all, my throat was magnificently swollen. The neurosurgeon and his team had intubated, of course. That’s standard for any surgery. Once I was intubated, though, they moved my esophagus out of the way to get to my spine. It was to be expected that my throat would be swollen, my voice nonexistent when I came to. No alarms raised at all. When I began recovery at home, I lay in my bed for several days, pretty much alone while I rested. When a family member checked on me, I tried to speak, no sound but a rasp emitted from my throat. When I got out of bed, I found myself breathless and gasping like a goldfish who’s been dropped on the kitchen counter while its bowl is being cleaned. We kept assuming it would get better. A couple of weeks later, it hadn’t.

I made an appointment with an ear, nose, throat specialist.

VocalcordparalysesThe doc ran a camera up through my nostril and down my throat, encouraging me all the while to relax. I tried, I really did. As I attempted to vocalize, the doc watched a monitor. Finally, after several minutes of awkward grunts and whispers, he shook his head, “The right cord isn’t moving at all.”

I left the medical building with a referral to a voice specialist in Houston and what felt like an iron cloud floating above my head.

I had no voice.

Over the next few posts, I will be exploring the story of losing my literal voice, what it took to get it back, and what I learned about myself, my relationships, and my mission in that time.

For now, I will share a thought from Brene’ Brown, a personal hero. It rings true because the only thing that sustained me for the grief that would be a constant companion in the year to come was the deep well of joy that my husband and kids had been filling for all our life together: “Joy, collected over time, fuels resilience – ensuring we’ll have reservoirs of emotional strength when hard things do happen.”

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